Archive for the ‘Celiac Disease’ Category

the final….

In Allergy, Celiac Disease, Gluten Free on December 15, 2010 at 9:59 am

On Monday, Dec. 15th at eight o’clock weight loss expert and owner of Jena Wellness, Jena la Flamme and Kelly Courson, a Gluten Free Health Coach and pioneer of held a web-seminar titled “6 little known reasons why eating gluten free is sexy and will help you loose weight.”

The webinar, which is a seminar held on the internet, had a question and answer session in an instant message style covered the gluten free stories of both la Flamme and Courson and how they came to this profession.  Courson, who suffered from dermatitis herpetiformis, which is the skins reaction to celiac disease, results in an itchy rash for the patient always occurring in the same spot on the body.

“I was traveling for a month in Australia, eating all the cream puffs I could get my hands on, and half way through the trip I developed these large often oozing boils on my face,” Courson said of when the dermatitis herpetiformis started.

Courson, returned to the United States and spent the next two years getting tested for skin disorders and various medical issues, including ones as extreme as hepatitis.   “Your skin breaks out because your liver is being overloaded with toxins,” Courson said, of her initial skin reaction, “My liver was having a severe reaction to the amount of gluten that I was ingesting.”

La Famme, initially figured out she was positive for the disease when she went to work with a nutritional councilor to deal with an emotional eating problem.  Within two weeks of “Shunning the bun,” as Courson calls it, la Famme said, “I felt so much better, my stomach went from looking like I was always pregnant to being flatter, I had more energy, and finally felt the fog come out of my brain.”

Courson, discussed Dr. Peter Green, the head of The Celiac Disease Center at Columbia University book, Celiac Disease: A Hidden Epidemic. Dr. Green’s book is one of the most informing Courson said, “The book has all the answers, this book taught me things that simply buying Celiac Disease for Dummies, could not, The book shared with me that Celiac disease affects one out of 100 people, and 95 percent remain undiagnosed still, only five percent of these people have been diagnosed, that’s a huge number.”

“In the last 50 years, the amount of cases has increased four times, so something is going on with out diets. I think its especially since wheat has been so modified,” said Courson. “This is the statistic that I believe is the most accurate, ” la Famme said in response.  “It’s hard to believe that the number has grown to be that big,

La Famme who deals with siblings and blood family members being diagnosed said” I hope that as the awareness grows, people will go out for the blood test, so much can be prevented, with just a simple blood test especially among family members.”

My Crowd souring map which was created by various people, shows different locations in various regions of the country where Gluten Free items have been discovered.


This map, shows fifteen countries throughout the world that are very aware of Celiac Disease because of their various Celiac Disease organizations.



Celiac Disease, A History

In Allergy, Celiac Disease, Gluten Free on November 18, 2010 at 9:25 am

This week, I spent time creating a timeline to display the history of the diagnosis of Celiac disease.  From the timeline, you will learn how the findings and diagnosis of the disease started as far back as ancient Greece and has been gaining momentum ever since.  Throughout history the disease has been evolved and the process for diagnosing it has advanced.  Today, the disease is as popular as ever and is gaining national recognition through talk shows and celebrity endorsements.

Below, is the link to your historical journey.


A Gluten Free App

In Allergy, Celiac Disease, Gluten Free on November 10, 2010 at 9:38 pm


Gregg Katz is the creator of a website called Midlife Crisis Apps, a company that creates web applications for iPhones, Blackberrys and Droid phones. Katz said that the app was inspired by a family friend struggling with Celiac disease.  The friend expressed her concerns to Katz’s wife about the troubles she faces when shopping at the grocery store.  This seemed to strike a cord in Katz, whose son at the time was being tested for the gluten intolerance. He and his wife were having the same issues while food shopping.  Shortly after, the idea of the “Is that Gluten Free?” app was born.

“The response from the gluten free community was passionate and rapid.  We have had so many people reach out to use to thank us for creating this app,” Katz said.

The app itself is structured on types of food broken down by brands and lists within that brand or type of food what is and what is not gluten free.

“It is a great feeling to know that we have been able to help so many people by making one part of their lives a little easier,” said Katz of the satisfaction he receives from his app.

However, it is not all praises; Katz said he often also receives criticism which he takes constructively. “We have had our critics who feel like we either need to do things differently or we charge too much money.  I am not sure people realize how time consuming this endeavor is but we take it all in stride and continue to provide the best product we can to the market,” he said.

While the market for this app is for a very select group, Katz said that it has been the number one gluten free app on the iTunes app store since its launch. “We have sold more than we expected but not nearly the kind of sales you hear about with games and entertainment apps,” he said.

Katz is continuing to move in the direction of creating more apps for the gluten free community with his latest “Is that Gluten Free? Eating Out” Katz said this app will deal with identifying gluten free options in fast food and casual chain restaurants.


A Gluten Free Map

In Allergy, Celiac Disease, Gluten Free on November 3, 2010 at 10:35 pm

For any student attending college, one main concern is always the dining services on campus.  For some students, it is a struggle to find meatless items because they are vegetarian and for a select other group of students. Some students share a concern for finding items that are gluten free.  Gluten, which attacks the small intestine, is very painfully ingested.  Over the past year, many colleges such as Quinnipiac University have begun to offer more and more options for students who struggle every time they go to the cafeteria.

Leean Spalding, associate director of Dining Services for Chartwells at Quinnipiac University said, “Quinnipiac has about six students with gluten allergies. Our staff changes their gloves and utensils that they use when making food for these students.”

Spalding also discusses what is offered in the Quinnipiac café. “We do offer gluten free rolls at the Deli. We will offer items when they requested.  We are selective about what items are available since there are only six students with Celiac disease.”

Mary-Catherine Dolan, a Quinnipiac University senior said, “Students with Celiac disease are lucky to live in an area with so many options around them.  I am a very health conscious person and often eat gluten free just because I believe it is healthier.”

“I love that the Pizza Fusion station has gluten free pizza, I have had their pizza numerous times at their retail stores and it is really healthy and delicious,” Dolan said about the upgrades to Quinnipiac’s cafeteria.

gluten free food, the story

In Allergy, Celiac Disease, Gluten Free on October 23, 2010 at 7:12 pm

Celiac disease currently affects more Americans than Epilepsy, Crohns, Ulcerative Colitis, Multiple Sclerosis and Cystic Fibrosis as reported by  For years, gluten free foods have been labeled with the stigmatism of being expensive, hard to find and unpleasant tasting.  However, over the course of the last few years, many companies have emerged with products they believe can fight some of the nasty rumors going around about gluten free goodies.

“Awareness is at an all- time in my eyes. The business has really grown over the past two years, due to the demand by the consumer,” said Still Riding Pizza assistant manager Alex Magliocco.

Still Ridding Pizza, a gluten-free pizza distribution company based out of Connecticut, currently distributes to more than 30 states.  Still Ridding Pizza currently hopes to expand their business into the profitable gluten free pasta market.

Of the new gluten free pasta enterprise Magliocco said, “The pasta should sell relatively well especially since we are a gluten free facility, unlike the restaurants who make both and have to keep all gluten free products separate.”

According to the blog Gluten Free Raleigh, gluten free foods are on average, 242 percent more expensive than their non-gluten free counterparts. This price increase is something Luigi Cirillo, owner of Sapore Italian Deli and Catering in Trumbull, Conn., knows all about.

“Gluten free foods are expensive, anyone who buys it knows that, and any business man knows how to sell a product in demand,” Cirillo said of the prices of gluten free foods.

Magliocco said it is not hard to find restaurants with gluten free options. Websites such as The Gluten Free Registry, the Gluten Free Restaurant Awareness Program and Gluten Free Restaurants all provide the information needed for people struggling with Celiac disease to eat out.  In conjunction to the overwhelming number of people being diagnosed with celiac each year stated that, the U.S. Department of Agriculture estimated that the gluten-free industries revenues will reach $1.7 billion by the end of this year. Cirillo said he hopes that the increase in a need for gluten free product will put his new family deli on the map and also be good for business.


Gluten Free at a Farmers Market

In Allergy, Celiac Disease, Gluten Free on October 18, 2010 at 8:40 pm

his video is about Lori Fichter and her struggles with being diagnosed with Celiac disease.  Through her struggles as a baker she started her company Mama Earth.  Fichter was at the Ramsey, N.J. farmers market this past Sunday sharing her story.

Celiac Disease, the video.

In Allergy, Celiac Disease, Gluten Free on October 6, 2010 at 9:11 pm

This video is about Celiac disease and the effects it has on people. The video tells the story of John DePuma, of Depuma’s Pasta, and how his wife was diagnosed with the disease. Linda Meyers also shares some insight into the disease.

Bacteria, the root of a genetic issue

In Allergy, Celiac Disease, Gluten Free on October 3, 2010 at 10:22 pm

The Wall Street Journal published an article today titled “One Theory Behind Adult-Onset Celiac disease: Gut Bacteria.”  The article focuses on the cause of Celiac disease being triggered in adults, and discusses how bacteria in the stomach could be the root of the problem.

The article, written by Katherine Hobson said, “A person might be born with a genetic predisposition to Celiac disease, but that for years those genes aren’t expressed. Then the gut bacteria changes, perhaps as a result of infection, surgery or antibiotics, triggering the expression of those genes.” The article explains that Celiac disease is not a condition that most people are born with and can develop at any age and at any time.

photo credit:

The disease is taking its toll greatly on those over 20 years of age and well into their 70s.  It has been proposed for years that Celiac disease, the intolerance to the wheat protein gluten, was a genetic issue that we now know can be triggered later in life.  However, we are now learning that it may not only be a gene that is causing the onset of the disease, but a product of the environments that people are living in. The main cause of all of the autoimmune issues that are developed by celiac is being labeled as bacteria, a common one referred to as small intestinal bacteria overgrowth, or another bacteria known as h pylori. The causes of this disease are numerous, but the development or triggering or Celiac disease by “gut bacteria” seems to be the latest development.  Doctors appear to be discovering by clinical trials that by testing a person at a younger age with the blood test for celiac can be re-tested five to 10 years later, and a significant number of people will have been affected by the disease by way of bacteria. Infection or antibiotics in the elderly make them very susceptible to the disease.  People living with the disease are hopeful that by identifying this problem of the bacteria it will be possible to develop a medication to counteract the symptoms caused by ingesting gluten.


Multimedia Journalism

In Allergy, Celiac Disease, Gluten Free on September 22, 2010 at 10:13 pm

This video is the first installment of an experimental online TV show called “Gluten Free TV.”  The show which is hosted by Celiac Chick’s creator, Kelly Courson, takes the viewer on a tour of the popular New York City French restaurant Bar Breton. The episode, which is titled “Smart & Tasty,” includes a visual tour of the restaurant, a meeting with the head Chef and a demonstration of how to make their famous Gluten Free galette.  The end of the video also features the recipe for the dish.  The video features great titles and music while getting right to the point.

One of the most difficult parts of having this allergy is going to a restaurant and not being able to order items on the menu that appeal to you because they contain gluten.  With a disease such as this where your diet is very limited, it is important to have people who can give you suggestions of places that you can go to eat out enjoyably.  The video, while being simple in how it is made, packs the punch of any great visual multimedia element.  I think the video adds great value to its audience by showing them a place they can go out to eat to enjoy themselves as well as educating them a bit more about a type of food they possibly never knew existed.

Another great practice is the “Gluten-Free Diet Slideshow” on  While there is no voice or music for this example, the 22 pictures, captions and explanations do a great job of educating the audience as to what Celiac really is with great visual explanations.  This would add value to the niche audience for this blog because it is a re-enforcement to the recently diagnosed or to a person who needs to explain to someone about Celiac disease.


Why bother blogging?

In Allergy, Celiac Disease, Gluten Free on September 9, 2010 at 1:47 am

Without a doubt, there is a need for more information on Celiac disease that needs to be shared. reported some statistics recently.  One out of every 133 Americans have Celiac disease the website said. This number comes out to be around three million people. The website also estimated that about 97 percent of Americans have the disease but are undiagnosed.  The disease has different effects depending on the person: some individuals experience the most extreme effects, while others experience none; however the number of possible symptoms comes to be about 300. The disease itself is known to affect more people in the United States than Crohn’s Disease, Cystic Fibrosis, Multiple Sclerosis, and Parkinson’s disease.  The website has also reported that the U.S. Department of Agriculture projects that the Gluten Free industries revenues will reach up to $1.7 billion in 2010. This statistic is realistic because on average, gluten free foods are known to be 242 percent more expensive than their non-gluten free counterparts the website said.

These statistics are shocking and by comparison they are saying that one in a 133 Americans is affected. That means if the enrollment at Quinnipaic University is 5,700, one in 42 students at the University has this disease. That’s two students in two classes since there are typically 25 students to a class. This number is astronomical for a disease that most people don’t even know exists. Not only is this an issue here in the U.S., it is a growing issue in Italy as they as a whole consume more products with wheat in it than any country.  In Italy, about one in 250 people have Celiac disease. In Ireland, about one in about 300 people have the disease. Not only is Celiac disease linked to issues such as Crohn’s Disease, studies have shown that it also can be linked to autism and ADD.  The Wall Street Journal just recently published an article on the disease.  This article shows the national recognition that the disease is now getting for the first time. The most important things a possible candidate can do is be aware, know the symptoms, check out blogs such as The Gluten Free Mom, Gluten Free Girl and the Chef and consult a physician.